We are all still home but we are all sick. The Dr was right, Oscar is fighting a virus and now we all have it. Not much fun but although Oscar's temp keeps rising it hasn't quite reached 38 yet. I think the antibiotics and antivirals they have him on are just enough to keep it at bay but not enough to totally get rid of it. So, I have my doubts about Monday going ahead. We'll let you know and keep your fingers crossed we don't go to hospital this weekend.
It would be nice to live in a world again where words had meaning and questions had answers and where you weren't constantly barraged with new and varied medical information. One day at a time, they say. You will find a new normal, they say. But this new normal is one where you don't ever seem to know anything and you are blindly trying to find the best approach without any guidance whatsoever. Whenever we ask a question, the answer is: we don't know. It is hard enough that we don't know why Oscar got this disease or whether he will be cured but the Dr's can't even tell us why some blood tests are so different to others and why other children respond differently. They seem to know so very little about this disease and focus on the treatment protocol without much understanding of how to adjust it to individual variations.
One day at a time - that is all we know and that is hard to live but we have no choice and will have to get past all our resistance and just do it.
Send us some positivity to keep the momentum going please and thank you for every little kind gesture, card, gift, comment, food and favours you have done for us along the way.